RESEARCH CALL: Idiopathic Hypersomnia (IH) & Exercise

Are you 18+ with a confirmed IH diagnosis? Researchers at t he University of Sydney want to hear from you

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September 28, 2026
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2
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Are you 18+ with a confirmed IH diagnosis? Researchers at the University of Sydney want to hear from you!

This national survey explores how people with IH experience physical activity and exercise, an area that has been largely understudied. Your participation could help develop resources to make exercise more accessible for our community.

Participation involves completion of two-part survey.

  1. Demographics information (age, diagnosis years, physical activity participation, IH Severity Scale
  2. Lived Experience of Exercise Survey

Survey link: https://redcap.sydney.edu.au/surveys/?s=9NMDHMWT9YTCXYMD

Questions? Reach out to the research team Dr Elizabeth Machan (elizabeth.machan@sydney.edu.au) or Miss Evelyn Groves (egro4250@uni.sydney.edu.au).

This project has been approved by the University of Sydney Human Research Ethics Committee (HREC) [2022/HE000880].

Download the Poster Advertisement

Download the Participation Information Sheet